Twas the night before Christmas

Twas the night before Christmas

My alarm clock went beep.

And so rudely awoke me,

From a deep, cozy sleep.

The glucose strips were lined up,

On their dressers with care.

Just waiting for us,

For we always were there.

Then what to my wondering eyes

Did I find?

But a normal blood sugar,

That gave piece of mind.

I then heard the noises

From downstairs below,

And heard Santa laughing,

Ho ho ho ho ho.

He said to me,

Renae, now what would you like?

I answered him,

Santa, help me rid of this fright.

I spend my days worried

about the highs and the lows,

and the long term affects,

because nobody knows.

and while visions of sugarplums

dance in their heads.

I count all the carbs,

With anxiety and dread.

I so want a cure

For this disease to be gone.

To throw out the insulin

And needles so long!

And Santa said, Renae,

The two things you need,

Are things you have now,

Just remember to believe.

The first one is Faith,

and I'm sure you'd agree.

That God's always there,

Even though you can't see.

The second is Hope,

and it's what keeps us going,

so pray for your children,

and your faith will keep growing.

And then with a wink

And a twitch of this nose,

He blew me a kiss

And up the chimney he rose.

So I sat by the tree

And I said a long prayer,

For families with diabetes,

Who were full of despair.

I felt very peaceful,

Full of much Christmas cheer;

And thanked God for that insulin,

That keeps my girls here.

Sketch of Time

JDRF Walk 2011

Adrienne, Rebekah, Amanda and I volunteered this year for the JDRF Walk for Diabetes held at Shelby Farms.  We had a great time working in the t-shirt tent.  For every $100 a walker raised they would receive a t-shirt.  Amanda raised $200 this year and she and Adrienne got a shirt. Our yellow shirts that we are sporting were for volunteers. We had a great time this year.  I love interacting with others that deal with Type 1 Diabetes every day.  Got to talk to some that were recently diagnosed and came to the walk to see what it was all about.  This is the first year for Adrienne to attend as a Type 1 Diabetic.

High Ketones

Last Thursday was a very hard day for Amanda.  Wednesday night her blood sugar was in the 400's.  So we changed her infusion set. Not sure why it was so high that night.  She hadn't checked her blood sugar all day.  Not Good.  And I think it had been too long since she had changed her set (which should be changed every 3-4 days).  Not Good.  Well all we could do at that point is change the set.  Thinking all is good now.  She goes to bed.  She checks it a little later and it is in the 300's.  Okay, all is good. It is coming down.  Later in the night she gets up thirsty.  We check again- back in the 400's.  I give her  a bolus and go back to bed.

Next morning, she is in the 500's.  I ask her to check her ketones.  It reads HIGH.  NOT GOOD.  She hasn't had high ketones since she was diagnosed 8 years ago.  Here is the definition of ketones according to the Joslin Diabetes Center:

Ketones are produced when the body burns fat for energy or fuel. They are also produced when you lose weight or if there is not enough insulin to help your body use sugar for energy. Without enough insulin, glucose builds up in the blood. Since the body is unable to use glucose for energy, it breaks down fat instead. When this occurs, ketones form in the blood and spill into the urine. These ketones can make you very sick.



These ketones can make you very sick is an understatement.  She was throwing up and very weak. We called her doctor and talked to her regularly all day.  We disconnected her pump and started shots. We had to give her phenergan and slowly introduce sprite mixed with sprite zero.  Once she was able to keep it down, she needed fluids to bring the ketones down.  The ketones and blood sugar had to come down similarly.  So it was a balancing act to bring the sugars down but not too fast.

By bedtime, she was in the 300's and had trace ketones. We were able to put her pump back on.  After pulling off the last infusion set we noticed that the tubing that is inserted right under her skin had crimped. So she wasn't getting any of her insulin on Wednesday night.

Friday morning all was back to normal (Not that any of this is normal).

This could have been a hospital visit.  I am so thankful for our doctors and nurses at the Endocrine Clinic.

Genetics and Diabetes (Joslin Diabetes Center)

Type 1 Diabetes Odds

Just who is at risk for developing type 1 diabetes? Here's a sampling of what Dr. Warram, a Lecturer in Epidemiology at Harvard School of Public Health, said is known:

• If an immediate relative (parent, brother, sister, son or daughter) has type 1 diabetes, one's risk of developing type 1 diabetes is 10 to 20 times the risk of the general population; your risk can go from 1 in 100 to roughly 1 in 10 or possibly higher, depending on which family member has the diabetes and when they developed it.
• If one child in a family has type 1 diabetes, their siblings have about a 1 in 10 risk of developing it by age 50.
• The risk for a child of a parent with type 1 diabetes is lower if it is the mother — rather than the father — who has diabetes. "If the father has it, the risk is about 1 in 10 (10 percent) that his child will develop type 1 diabetes — the same as the risk to a sibling of an affected child," Dr. Warram says. On the other hand, if the mother has type 1 diabetes and is age 25 or younger when the child is born, the risk is reduced to 1 in 25 (4 percent) and if the mother is over age 25, the risk drops to 1 in 100 — virtually the same as the average American.
• If one of the parents developed type 1 diabetes before age 11, their child's risk of developing type 1 diabetes is somewhat higher than these figures and lower if the parent was diagnosed after their 11th birthday.
• About 1 in 7 people with type 1 has a condition known as type 2 polyglandular autoimmune syndrome. In addition to type 1 diabetes, these people have thyroid disease, malfunctioning adrenal glands and sometimes other immune disorders. For those with this syndrome, the child's risk of having the syndrome, including type 1 diabetes, is 1 in 2, according to the American Diabetes Association (ADA).

Caucasians (whites) have a higher risk of type 1 diabetes than any other race. Whether this is due to differences in environment or genes is unclear. Even among whites, most people who are susceptible do not develop diabetes. Therefore, scientists are studying what environmental factors may be at work. Genes influencing the function of the immune system are the most closely linked to type 1 diabetes susceptibility, regardless of race. One of those genes is HLA-DR. Most Caucasians with diabetes carry alleles (gene variants) 3 and/or 4 of the HLA-DR gene. The HLA-DR7 allele plays a role in diabetes in blacks, while HLA-DR9 allele is important in diabetes among Japanese.

Day at Incredible Pizza with JDRF

JDRF had a kick-off for the Walk to Cure Diabetes at Incredible Pizza. This will be the first year that both of my girls are participating as diabetics. The three of us have decided to volunteer this year instead of forming a team to walk. However, Amanda has created a page to raise money.  The walk will be at Shelby Farms on October 1. We will be at the information booth if you come out.

I have the most incredible story about Time. It has happened twice so I am going to post it. Amanda's cousin lives just around the corner. One night she was there and Time was here. Time started alerting. We told her that Amanda wasn't here. We let her out in case she needed to "take a break". We let her back in and she insisted on alerting. So, we called Amanda and asked her to check her blood. Her blood sugar was low. We laughed and thought that was really an incredible coincidence. Just the other night, she again was at her cousins. Both times Amanda was outside. Time alerted. Since Adrienne was home and is now a diabetic, we had Adrienne check her blood. All was normal. We let Time out to "take a break". She came back in still insisting on alerting. So, we call Amanda. She was in the pool, got out and checked her blood. She was at 58. Wow! I love our dog.

Oxford Run 4 Hope Coming Up

Check out my link for the Oxford Run 4 Hope. It will be a 5K and Half Marathon to raise money for Camp Hopewell. This camp has a week in the summer just for kids and youth with Type 1 Diabetes. It is staffed with a doctor and nurses who volunteer their time. The goal is to raise enough money to make camp available for free. Amanda has loved her camp experience.

Dr. Becky is getting the cabin 7 girls together to cheer on the Marathon runners in their last 1/2 mile. This is also in honor of Lindsi, who died this year due to complications from her Diabetes. She was in cabin 7 with Amanda.

Amanda, Adrienne and I will be there to volunteer and cheer on the runners.

Adrienne is Diagnosed with Type 1 Diabetes

Adrienne is my 20 year old and is a junior at the University of Memphis. Three weeks ago, she was taking exams and remembers being extremely thirsty that week. She would down three bottled waters and it would not quench her thirst. When exams were over she mentioned that to me and the fact that she was going to the bathroom a whole lot. So, I asked her to check her blood and let's rule that out. Well, she checked and her blood glucose was 500. I'm afraid we didn't rule it out. I called Amanda's endocrinologist right away. I happened to have her cell phone number from a previous conversation about Amanda's blood work. I just jotted it down for future reference. Never dreamed I would need it so soon. Dr. Karabell was kind enough to answer my phone call even though she was with a patient. She asked me to check her ketones and call her back in 5 minutes. No ketones. I'm praising the Lord for that. You start getting into trouble when that happens. It was a very long 5 minutes. When I called her back she said to come in right away.

We were seen fairly quickly. She gave Adrienne her first insulin shot with an insulin pen. She needs a shot twice a day at this point. She wants her on a pump as soon as possible. It just makes life much more manageable on the pump.

It's been over 2 weeks now since diagnosis. Adrienne is doing amazingly well. She has watched her sister for 7 years and has been involved in her care. The two of them are bonding like I've never seen before. That is the blessing part of this story. They have each other.

Our new challenge is what to do with Time. She has alerted for Adrienne once on her own. We haven't been sure if we should encourage that or not.

We have known since Adrienne was about 14 that she carried the antibody GAD for Type 1 Diabetes. During some routine blood work, her blood glucose that day was over 200. The doctor said that we need to check that out. I took her to the endocrinologist and they ran a test that would show if she carried the antibody for Type 1 and she did. At the time, the doc said that she would develop it in the next year. Well, the year came and went and then another and another. I decided that it was not going to happen.

Last summer after Adrienne's trip to Ecuador, she was very fatigued for a very long time. I started checking her blood sugars at random and found that she was running in the 200's again on occasion. Dr. Karabell checked her A1c which checks how your blood sugars are running for the past 3 months. It was a perfect 5.1. She said not to worry about diabetes; she does not have it. The Lord gave her another semester without diabetes. For that I am thankful. She finished her semester with 4 A's and 1 B and an Excellent portfolio for the graphic design department. For that I am thankful. She has 4 weeks before school starts to learn how to manage it for herself. For that I am thankful. And, she has a sister that can help her. For that I am thankful.